ALS Network

A new approach to treating ALS is moving forward. Nura Bio has raised $73.8 million to advance clinical testing of two experimental therapies designed to protect nerve cells by targeting SARM1, a protein involved in axon degeneration. The funding will support an ongoing Phase 1b/2a ALS trial of NB-4746 and the early development of a second investigational therapy, NB-9402. Researchers hope this strategy could help slow nerve damage and lead to new treatment options for people living with ALS. Read more at ALS News Today: https://ow.ly/R6Os50Zp84k #ALSresearch #ALS

As we strive to better serve the ALS community, your feedback is incredibly important to us. Please take a few minutes to complete our brief survey and share what matters most to you. Your insights help guide the ALS Network’s efforts in care, research, advocacy, and support services for people living with ALS and their loved ones. Together, we can strengthen our impact and help accelerate progress toward better treatments and cures. https://lnkd.in/eucu7fnc

The Ice Bucket Challenge returns. Inspired by former NFL star Chris Johnson’s courage, let’s turn awareness into action! Take the challenge. Nominate your friends. Then help fuel the next breakthrough with a gift to the ALS Network research program. Donate today: https://lnkd.in/gNrjTTZJ Together, we can bring hope closer to a cure. The ALS Network challenges: Los Angeles Dodgers, San Francisco Giants, San Diego Padres, Athletics, Los Angeles Angels #IceBucketChallenge #ALS #ALSResearch #CureALS

Now is the time to act. The ACT for ALS Reauthorization Act is headed to the House floor THIS Monday. The ALS community has worked tirelessly to get us here, but we aren't finished yet. Today, we're asking every advocate to contact their Representative and urge them to vote YES on ACT for ALS reauthorization, H.R. 8205. Together, we can help ensure lifesaving ALS research and expanded access programs continue without interruption. Take action now: bit.ly/ACT4ALStoday

Exciting work from the ALS Network Scientific Advisory Committee member Steven Finkbeiner and Deepak Srivastava at Gladstone Institutes demonstrating how AI-powered "thinking microscopes" could accelerate discovery for Parkinson's, Alzheimer's, ALS, and other neurodegenerative diseases. Learn more about this work: https://ow.ly/1PGj50ZnyGh #alsresearch #aiinscience

Aaron Lazar’s Impossible Dreams welcomes Coach K for a special episode about dreams, adversity, family, ALS, and the courage to keep becoming. This conversation is about more than one episode. It is about awareness, action, community, and support for Aaron and the broader ALS community. Please watch, listen, and share: https://lnkd.in/eJZAPcvM #ImpossibleDreams #CoachK #AaronLazar #ALS #ALSawareness #Duke #AlwaysBecoming

NOW LIVE: Please watch our ASK ME webinar, "The FDA and Patient-Focused Drug Development.” Hosted by Sarah Dougherty, PhD, Senior Director of Research, ALS Network, the program will feature speakers from the FDA: Robyn Bent, MS, RN, Director, Patient-Focused Drug Development Program, Center for Drug Evaluation and Research and Michelle Campbell, PhD, Associate Director, Stakeholder Engagement and Clinical Outcomes, Office of Neuroscience at the Center for Drug Evaluation and Research. https://lnkd.in/eHMT46vb

We invite you to join us tomorrow for our next ASK ME educational webinar, "The FDA and Patient-Focused Drug Development," at 12:00 PM PT / 9:00 AM HST. Hosted by Sarah Dougherty, PhD, Senior Director of Research, ALS Network, the program will feature Robyn Bent, MS, RN, Director, Patient-Focused Drug Development Program, Center for Drug Evaluation and Research, FDA and Michelle Campbell, PhD, Associate Director, Stakeholder Engagement and Clinical Outcomes, Office of Neuroscience at the Center for Drug Evaluation and Research, FDA. RSVP today to reserve your spot and take part in a live Q&A session following the presentation. Register here: https://ow.ly/FIRN50Zn0YH

Coach K sits down with Aaron Lazar on Impossible Dreams podcast for a conversation about preparation, leadership, adversity, Duke, family, and the work of always becoming. The full episode premieres 8 a.m. ET, Wednesday, July 15. Please watch/listen, and share. #ImpossibleDreams #CoachK #AaronLazar #ALS #ALSawareness #Duke #AlwaysBecoming Duke Athletics Duke Health

Join us for Adaptive Yoga/Assisted Movement and Guided Meditation on Wednesday, July 15, at 11:30 AM PT/8:30 AM HST. Adaptive Yoga for ALS is a fully seated or reclining practice, using a loved one or partner, to enjoy guided meditation, assisted movement and body work. This class is taught by Laura Nash with Uprising Arts Studio in Marin County. Laura is a certified yoga therapist and an adaptive yoga specialist. This class is designed for students with limitation of movement due to ALS. It will include all aspects of yoga, including centering, meditation, visualization, yoga poses, breath work and relaxation. To register and for more information, please contact Care Manager, Sara Holiday at sholiday@alsnetwork.org.