myFace

Welcome to the myFace team, Justin Stewart! Born with frontonasal dysplasia, Justin is a craniofacial advocate, storyteller, content creator, and basketball coach whose work has reached millions through honest storytelling that expands awareness and representation. His advocacy has been featured by Vogue, Good Morning America, and The Washington Post, and he’s partnered with organizations including Smile Train and myFace to help amplify the voices of the craniofacial community. As Program Officer, Justin will lead and grow the myFace Brotherhood and Speaker Series, expand the myFace Wonder Project across New York City’s five boroughs, strengthen relationships with families and community partners, and help elevate the stories that inspire understanding and change. We’re thrilled to have you on board, Justin. Join us in giving him a warm myFace welcome! 💙

Sometimes, one opportunity can change everything. Former U.S. Paralympic alpine skier and physician-in-training Caitlin Sarubbi MD, MS shares how an invitation to what is now Move United’s Ski Spectacular introduced her to adaptive skiing, a supportive community, and a passion that changed the course of her life. What began as one week on the slopes became a lifelong journey of freedom, community, and purpose. 🔗 Watch Caitlin’s Fireside Chat and learn more about her story: https://lnkd.in/gWCjm2Zr

Our partnership with JCC Chicago continued this summer with another meaningful workshop at two Apachi Chicago Day Camps! Over four days, we connected with 160 campers across both camps to explore inner confidence, celebrate what makes each of us unique, and choose kindness every day. This year’s Growing Hope theme at the J is “chutzpah,” a reclaimed Yiddish term that inspires resilience, courage, and the confidence to embrace what makes each of us unique. We were honored to be part of helping bring that message to life.

The Cleft Portraits Tour is coming to Chicago! Join myFace, Lurie Children’s Hospital, and JCC Chicago as we welcome Katie Manning’s powerful portrait series celebrating the beauty, strength, and stories of individuals born with cleft and craniofacial differences. Whether you join us at JCC Chicago or Lurie Children’s Hospital, we hope you’ll stop by to experience this moving exhibit and connect with our community. 📅 August 18, 2026 📍 Bernard Weinger JCC 🕙 10:00 AM–1:00 PM 📍 Ann & Robert H. Lurie Children’s Hospital of Chicago 🕔 5:00–7:00 PM 🔗 RSVP: https://lnkd.in/dtUxPvBw

On July 11, nearly 60 myFace community members, families, friends, and partners gathered at the You Are Beautiful Headquarters in Chicago for our second annual myFace is Beautiful event. The gallery showcased 120 “myFace is Beautiful” art boards created by participants from 19 states, celebrating the beauty of every face and the power of belonging. Guests enjoyed food, mocktails, and an interactive portrait workshop led by myFace community member and artist Celina LeRoy, creating space for creativity, connection, and self-expression. Throughout the evening, families connected over shared experiences, new friendships were formed, and meaningful conversations opened the door to future partnerships. It was a powerful reminder that when people come together in community, everyone feels seen, valued, and empowered. Thank you to You Are Beautiful, JCC Chicago, our partners, and everyone who made this special evening possible. We can’t wait to do it again next year.

The 100 Cleft Portraits Tour, created by UK artist and trauma-informed coach Katie Manning, will be making a stop in Chicago! Join us for this traveling exhibition that celebrates the beauty, strength, and individuality of people with cleft and craniofacial differences. myFace is honored to be a national sponsor alongside Smile Train, Children's Mercy Hospital, and the Virginia B. Toulmin Foundation. 🗓️ August 18 📍 Bernard Weinger JCC, Northbrook @ 10:00 AM - 1:00 PM & Lurie Children's Hospital @ 5:00 PM - 7:00 PM 🔗 RSVP: https://lnkd.in/dtUxPvBw

We're hiring! 📣 myFace is seeking a Director of Development to lead and grow our fundraising strategy as a member of our senior leadership team. This is an exciting opportunity for an experienced fundraising professional to help strengthen our mission, expand philanthropic support, and build a sustainable future for individuals and families affected by craniofacial differences. The ideal candidate is a strategic and relationship-driven fundraiser with a proven track record of securing major gifts, leading high-performing teams, and engaging a wide range of stakeholders in meaningful philanthropy. At myFace, we believe lived experience brings invaluable perspective. We strongly encourage individuals with craniofacial differences and others with lived experience in our community to apply. We also welcome applications from all qualified candidates who are passionate about advancing our mission. To apply, please send your cover letter and resume as a single PDF to myfaceDoD@pbrsearch.com with the subject line "Last Name First Name - Letter Resume," and complete the Voluntary Self Identification form. Learn more about this exciting opportunity: https://lnkd.in/giP2jJnT We look forward to hearing from you!

This Cleft and Craniofacial Awareness Month, myFace Chicago's Rena Rosen joined Ann & Robert H. Lurie Children's Hospital of Chicago’s Skylight TV as a special guest cohost, bringing smiles, connection, and awareness to children and families throughout the hospital. The show was broadcast live from the Panda Center, where Rena teamed up with host Kevin for a lively game of Body Parts Bingo while sharing information about myFace, our partnership with Lurie Children's, our upcoming family picnic, and fun facts about craniofacial differences throughout the hour. Children and families played together both in the Panda Center and from their hospital rooms, with winners calling in to claim prizes delivered right to their bedside. It was a joyful hour filled with laughter, friendly competition, and meaningful moments for patients, siblings, and caregivers alike. We're grateful to Skylight TV and Lurie Children's for creating opportunities like this to bring awareness, celebrate our community, and remind families that they're never alone.

Our annual Races for Faces is coming up soon which means Summer and Team Cat Hat are back again to encourage you to join them this year! 🗓️ Sunday, September 27 ⏰ 9am - 1pm 📍 Hudson River Park’s Pier 62 @ 23rd St 🔗 Learn more about how you can be part of Races for Faces: www.racesforfaces.org

It’s Craniofacial Awareness Month again and that means another special segment of The Nurse Practitioner Show, hosted by Pat Chibbaro, on Doctor Radio on SiriusXM channel 110! Today Pat will be joined by myFace Chicago’s Senior Program Officer, Rena Rosen, to talk about her lived experience and raise awareness. 🗓️ Today, Thursday, July 2nd ⏰4:00-4:30PM ET 📻 Doctor Radio on SiriusXM channel 110 🎙️ Join the conversation with your questions and comments by either calling 1-877-698-3627 or email docs@siriusxm.com.