GNŌMATIX reposted this
"CHEO and the CHEO Research Institute will use Claude credits to develop and evaluate AI-enabled approaches aimed at improving health outcomes and the care experience for children, youth, and families, and to study how AI can be most responsibly applied in children's health." Holy shit no. Sorry, no. This has changed my priorities a little bit. CHEO is where the infant bood heel prick repository is kept. I filled out the forms for having my two Canadian-born kids samples returned to me from their archive, as I did with my daughter Evelyn from the State of Michigan's repository. I did so because I had read an article, in the Economist I believe, about a nurse who had been involved in cord blood collection efforts but later founded a charity advocating against the practice for a number of reasons everyone really should be aware of. But part of that story also described the repositories of "heal prick" cards (historically done for metabolic disorders leading to immediate infant risk of death if not identified). It mentioned how the State of Texas had granted access to their samples to The US Army, who were planning to use it for long-term genetic studies related to future enlisted individuals. (Aka: Super Solidier Programs.) Canadians may or may not know that the US Army collects and keeps biological samples from enlisted individuals; as far as I know, the government is generally able to collect and keep whatever reasonable samples they wish during your service period. I do know that they have a national archive of FFPE samples going back to at least WW I, if not earlier. I don't think asking parents to consent to provide their children's DNA and tissue samples to any entity is morally or ethically justifiable given the technology that exists today. It's not required; it can't be possibly be obtained with informed consent, given the state of science education, and the "terroristic threat" tactics public health officials have adopted since 9/11. ("Listen to us or you/your baby dies!!!") And I know I'm correct in being concerned, because shortly after I sent the forms to CHEO (back in 2015), I had two new Twitter followers. The head of communications and the head of operations at CHEO; this was when my profile still had my ICGC DCC position listed. And since then, everything I've seen pressed-released out of CHEO has been the same sort of 23andMe-style "research partners" marketing language. REAL research isn't done in secret. Ethical research partners announce who and what they are doing with the samples. When I got the cards back, they had multiple hole punches. I never received any information about what tests were performed, or what the results were. In my opinion, that's a criminal human rights violation.