ERN-RITA

📢 Released statement on the EMA recommendation regarding avacopan (Tavneos) Recent developments regarding avacopan (Tavneos) have raised important questions for patients living with ANCA-associated vasculitis (AAV) and the healthcare professionals who care for them. Read ERN RITA's statement, outlining what the recommendation means, our position, and practical guidance for patients and clinicians.

📅 Thursday,14 May 2026 🕛 13:00 - 14:00 CET We are happy to announce that the postponed 2 April PReS Introductory Course Webinar focusing on Immunoprophylaxis, will now take place on 14 May. 𝗦𝗽𝗲𝗮𝗸𝗲𝗿𝘀 🔹Dr. Natasa Toplak MD, PhD, prof. of paediatrics, paediatric rheumatology 🔹Dr. Masa Bizjak MD, paediatric rheumatology 🔹Dr. Amra Adrovic MD, Associate Prof. of Paediatric Rheumatology Last chance to register👉🔗 https://lnkd.in/d_nMdAvp #PReS

During Vasculitis Awareness Month, ERN RITA and EUVAS hosted four Tuesday Lunch with RITA webinars, bringing together hundreds of attendees from across Europe and beyond. Over four weeks, leading experts shared insights on: - Cryoglobulinaemic Vasculitis - Primary CNS Vasculitis - IgA Vasculitis - Personalising Immunosuppression and Care Pathways in ANCA-Associated Vasculitis A big thank you to EUVAS for their support in organising this series, and to all our speakers and chairs for their excellent presentations and discussions. 🎥 Missed a session? The recordings are now available on our YouTube channel: https://lnkd.in/dfjKXgAi #VasculitisAwarenessMonth #Vasculitis #ERNRITA #EUVAS #RareDiseases #TuesdayLunchWithRITA

📩 Stay connected with ERN RITA! Would you like to keep up to date with our educational activities, upcoming webinars, member initiatives, and events across the network? By joining the ERN RITA newsletter, you will receive regular updates on: - Upcoming webinars and educational activities - Events organised by ERN RITA and our members- News and initiatives from across the network - Opportunities to engage with the rare immunological diseases community Join our mailing list and stay informed about the latest activities and developments within ERN RITA. 👉 Subscribe here: https://lnkd.in/e-zveHdV

ERN RITA is pleased to highlight a new publication by members of the network published in Bone Marrow Transplantation (Springer Nature): “Updated EBMT/ESID Inborn Errors Working Party Guidelines for Haematopoietic Stem Cell Transplantation for Inborn Errors of Immunity and Metabolism”. Developed in collaboration with experts from EBMT, ESID and ERN RITA, the updated guidelines reflect recent advances in HSCT, genetic diagnostics and treatment approaches for patients with inborn errors of immunity and metabolism. Congratulations to all authors and contributors involved in this important collaborative work. Read the publication: https://lnkd.in/edJdRYkQ

Join the next session of the CAML Rheumatology Series on 16 June at 9:00 (Lisbon time), featuring Prof. Rodolfo Gómez. 🧬 Topic: “Targeting Innate Immunity and Bone Metabolism in Rheumatic Diseases: From Bench to Bedside” This seminar will explore emerging insights into the role of innate immunity and bone metabolism in rheumatic diseases, bridging fundamental research and clinical application. 📅 16 June 2026 🕘 9:00 (Lisbon time) 📺 Live streaming via YouTube: https://lnkd.in/g7W9bDsq We warmly invite colleagues, researchers, clinicians, and students to join the discussion and share this event within their networks.

📢  Save the date for the 22nd biennial ESID Meeting, taking place from 14–17 October 2026 in Maastricht, the Netherlands. This edition, centred around the theme “Translational Immunology beyond boundaries”, will highlight the connections between basic science, clinical research, and multidisciplinary collaboration in the field of inborn errors of immunity. The programme will feature keynote lectures, symposia, educational workshops, interactive sessions, poster presentations, and meet-the-expert discussions with internationally recognised experts. ERN RITA encourages members of the Primary Immunodeficiencies (PID) stream and the wider network to take part in this important scientific and educational event. 📍 Maastricht, the Netherlands 🗓️ 14–17 October 2026 👉 More information: https://esidmeeting.org/ European Society for Immunodeficiencies (ESID) IPOPI

📢 ERN RITA is pleased to promote the 33rd annual PReS Congress, taking place from 16–19 September 2026 in Belgrade, Serbia. This year’s congress will bring together internationally renowned clinicians and scientists to discuss the latest advances in paediatric rheumatology and immune-mediated diseases, including new therapeutic perspectives ranging from CAR-T cells to gene editing. ERN RITA encourages members of the Paediatric Rheumatology (PR) stream and the wider network to participate in this important international event. We are also pleased to share that ERN RITA will be present at the congress with a booth and we look forward to meeting colleagues, members, and partners throughout the event. 📍 Belgrade, Serbia 🗓️ 16–19 September 2026 👉 More information: https://lnkd.in/eHzhya5Y

⏰ Reminder: our 3rd webinar for Vasculitis Awareness Month takes place tomorrow! After two insightful sessions on Cryoglobulinemic Vasculitis and Primary CNS Vasculitis, we are looking forward to welcoming you to our next webinar dedicated to IgA Vasculitis, organised in collaboration with EUVAS. This session will explore this rare immune-mediated small-vessel vasculitis, which can affect multiple organs and often requires multidisciplinary care. We are pleased to welcome: 🔹 Dr Alexandra Audemard-Verger 🔹 Dr Augusto Vaglio Moderated by Dr Sara Monti & Dr Thomas Renson 🗓️ Tomorrow | 12:00–13:00 CEST 💻 Online via Zoom 👉 Register here: https://lnkd.in/ePCdpNJP